My parents are taking over my life.
That sounds like the statement of a desperate teenager, but I am, in fact, a middle-aged woman. I have started this blog to have an outlet for myself to explore the difficulties and frustrations of caring for two parents, both in their 80s. My mother has been diagnosed with mild to moderate dementia. My father has lived with diabetes and all its complications (heart disease, kidney problems, etc.) for more than 30 years; he's in a short-term nursing care facility now, and - yep - he also has dementia.
My partner and I moved to my hometown of Pittsburgh from New York City two and a half years ago so that she could take a new academic job. I had lived away for 25 years - almost all of my adult life. Shortly after we moved, my partner's father died, and then my father had a heart attack and my brand-new life fell apart. After his hospitalization, my middle sister (who also lives here) and I shuttled him back and forth to four or five different kinds of doctors, until he seemed to stabilize - and then, what do you know, my mom got sick.
Now there are many days I wish we'd never moved here.
Sometimes I am very patient with my folks; some days I have to stop myself from being mean. It is often emotionally more than I can tolerate, dealing with people who even on a good day don't make any sense. Add to that the fact that my parents were never terribly supportive of me anyway - my dad once screamed at me, about being gay, "Why can't you be normal!" - and maybe you get a picture of my dilemma.
I've tried going to a caretakers support group, but instead of supporting me it made me feel insufficient - just about everyone in the group had taken their demented parents home to live with them. For shame, Paula! I often feel like a "bad" daughter - a bit like the Louis Ironson* of daughters - because I can't, or rather won't, sacrifice myself in that way.
*Of Angels in America, who finds he can't take care of his lover with AIDS
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3 comments:
Funny, Paula, and sad. So many friends recently have seen their parents' mental decline. For my folks, it was simply physical decline, but still sad and infuriating and frustrating.
Did you have a chance to see Tales of the Lost Formicans when it was done at Pitt recently? (The long-overdue Pittsburgh premier of Constance Congden's awesome play.) If you missed it, I can lend you the book. Congden used her experience with her own father's dementia, the medical/scientific aspects of dementia, the daily frustrations, the heartbreak, the confusion, added her rebellious teenager, mixed in a couple of alien observers, and made something that, amazingly, all comes together on the stage. It's poignant and hilarious, as are your stories.
Hang in there, grrll. And dump the support group. I know you do a lot to see that your parents are well taken care of. Make sure you look out for yourself as well!
Bridget
Although I'm one of those who has set up mutual housekeeping for my mother because of her Ancient frailty, which includes dementia, I agree with you about support groups. I tried one for some weeks several years ago. Couldn't do it. First, there seems to me something nefarious about having overworked, burdened caregivers seeking support from other overworked, burdened caregivers. Second, when I have time that is wholly mine, the last thing I want to do is do anything connected with caregiving.
I guess they're good for some people but, funny thing, none of the caregivers, past and present, live-in or live-out, who I know belong to a formal support group.
The drive to drive every caregiver into a support group reminds me of something I heard recently, might have been Andy Rooney who said it, it sounds like him: If something is being pushed hard, it's a good idea to wonder why it needs such a strong PR campaign and who's really benefiting.
Your site inspired me to start blogging to heal. Check out my similar story...(I'm new, and my site has lots of work to be done).
Senility Acres - http://senilityacres.blogspot.com/index.html
Hang in there Sister!!
Michele
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